Today is Sunday, Averie is 5 days old! What a miracle she is. Even the doctors admit that in their own way. She has kept perfect numbers, never even gave us a scare. She got to drink milk for the first time today and loved it. Her only complaint was that she has a 10-15 cc limit. I was told that she would be able to go home if she did well with eating. I think I have to room in with her for a couple of days first, to take over total care for her and get comfortable with it. She is on NO medicines, WOW. (Well, except for the antibiotics she is having b/c of her ovary surgery) She is a little yellow, hopefully the numbers go back down for this so it does not delay things. I am sure everyone knows this, but she does still need surgery for her heart, she just does not need it immediately like Andrew did. She will come home and go to the cardiologist frequently and they will be watching through ekg and echo to know when it is time. Some babies like her have gone to 9 months, we will see. What a blessing that is just is not now! We are still waiting on Pathology reports for her cyst they removed. And we are also expecting to hear soon about the DiGeorge Syndrome test. The genetics doctor met with Don and Averie, and he is almost sure she does not have this syndrome, they are running the tests to be sure.Doctors tell us more than daily that she is suprising everyone by doing so well. She came out SO blue, it really scared everyone. She pinked up very fast. Most doctors I knew basically did not give her a chance at all. Even the internet was not helpful in giving us hope. But, "Lean not unto thine own understanding..." That is what I alwasys quoted over and over on the way home from my appointments. There is no way to really say thank you to everyone who has prayed for this baby. I do hope you all continue as you just never know what each day will bring. Take care and live each day for God, put Him first and everything else will be taken care of!
Sunday, January 10, 2010
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Ah Lord GOD! behold, thou hast made the heaven and the earth by thy great power and stretched out arm, and there is nothing too hard for thee: Jeremiah 32:17
5 comments:
Thank you so much for keeping us updated! Blogs and FB are so wonderful! Praise the Lord for his blessings, Averie is so beautiful!
Congratulations on your new little girl! Averie is beautiful and a true miracle. We'll be keeping you in our prayers.
Heidi (from the yahoo truncus list)
http://www.carepages.com/carepages/TheBlaisFamily
Congratulations! I'm so happy to hear that things are going well so far. I hope she's able to get big and strong before her surgery.
Ashlea (from the Truncus group)
Hi Angie,
Glad to hear that things are going well with the baby.
Came your way through the truncus site.
Pam and madison
www.caringbridge.org/visit/madison
Hi. I don't know if you remember me or not. My daughter, Kaitlyn, had surgery at CHNO a couple of years ago. We chatted a bit on the APVS message board. I was just thinking about you guys and wanted to see how little Averie was doing? Any new updates?
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