Today is Sunday, Averie is 5 days old! What a miracle she is. Even the doctors admit that in their own way. She has kept perfect numbers, never even gave us a scare. She got to drink milk for the first time today and loved it. Her only complaint was that she has a 10-15 cc limit. I was told that she would be able to go home if she did well with eating. I think I have to room in with her for a couple of days first, to take over total care for her and get comfortable with it. She is on NO medicines, WOW. (Well, except for the antibiotics she is having b/c of her ovary surgery) She is a little yellow, hopefully the numbers go back down for this so it does not delay things. I am sure everyone knows this, but she does still need surgery for her heart, she just does not need it immediately like Andrew did. She will come home and go to the cardiologist frequently and they will be watching through ekg and echo to know when it is time. Some babies like her have gone to 9 months, we will see. What a blessing that is just is not now! We are still waiting on Pathology reports for her cyst they removed. And we are also expecting to hear soon about the DiGeorge Syndrome test. The genetics doctor met with Don and Averie, and he is almost sure she does not have this syndrome, they are running the tests to be sure.Doctors tell us more than daily that she is suprising everyone by doing so well. She came out SO blue, it really scared everyone. She pinked up very fast. Most doctors I knew basically did not give her a chance at all. Even the internet was not helpful in giving us hope. But, "Lean not unto thine own understanding..." That is what I alwasys quoted over and over on the way home from my appointments. There is no way to really say thank you to everyone who has prayed for this baby. I do hope you all continue as you just never know what each day will bring. Take care and live each day for God, put Him first and everything else will be taken care of!
Sunday, January 10, 2010
AngieDon Mauck January 7 at 9:57pm
She is stable and still out of it after surgery for removing the large cyst and removing the ovary it wrapped around. I misunderstood the ventt thing. She is on the vent still, they have weaned the pressure and there is no extra oxygen required. I am hoping to hear she is back to no vent tomorrow and acting like she was prior to surgery. They expect her to. We should be getting results back on the testing of the cyst tomorrow or Monday. Her colon is completely fine, no issues there! Thank you again for being there to hear our concerns and pray for her so much.
She did great, as I am sure you have heard. Once again, God has surprised the doctors, but not us! She is my biggest girl, 7 lbs even but short like the others, 18.5 inches long. Her hair, not much up there, but what we see is dark. That is how all mine start out. She screamed and screamed at her birth, something I prayed VERY hard to hear! I cried and cried and rejoiced!Her heart is doing great, she was under the oxygen hood for a couple hrs, but nothing since then. Her cardiologist is awesome and you could hear him smiling through the phone when he gave me her first update. We do not know much about the cyst or her enlarged colon. Cyst is still there, smaller at 4.4 cm. We will know more today, PLEASE PRAY FOR GOOD NEWS! You never know what is going on inside these little babies.Don has been up there the whole time with her except for overnight, at her hospital. He has done an excelent job on sending me pictures and video. He should get to hold her today. She cannot eat yet, and has been off and on fussy, but she seems fine. Big brothers and sisters are doing great with Grandma, of course, unaffected. Don's parents were proud to hear of this miraculous birth of their 22nd grandchild, and having a 6th granddaughter! The doctors now need wisdom more than ever as they get together and plan treatment for her. Will she need surgery right away or go home and grow first, if she keeps this up! What kind of cyst she has and so forth. I cannot tell you how much your prayers have meant to us and Averie's life and awesome start. I do not count any of it lightly! Thank you and there will hopefully be more awesome news to come today. I know there may be things we do not want to hear, but God always gives the right amount of GRACE!I just called to check on her at 215 and she has had NO changes!
Ah Lord GOD! behold, thou hast made the heaven and the earth by thy great power and stretched out arm, and there is nothing too hard for thee: Jeremiah 32:17
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